Sunday, November 1, 2009

Friday October 30 2009





This is where Asher will be getting treatment from here on out more than likely, Flagstaff Medical Center West Campus.......
Asher has his Consultation appt today in Flagstaff at 10:30 & 11:15...first he meets with a pediatrician (Dr. holt) to discuss his milestones and to check him over, and then he meets with the Physical therapist and then the Neurologist ( Dr. T)... It is going to be a long day.............
But curious to see what they have to say, but also nervous to hear what they say!
Asher weighs 14 lbs 12 oz. and is 24 1/4 inches in length....
Asher is 30 weeks today! It is so hard to believe that in weeks I was 30 weeks along when I had him so he is today what he was in my tummy when I gave birth to him...weird to look at it this way...........What a wild ride it was....
So we got up at the crack of dawn and headed out to Flagstaff to make his appt by 10:30 am and we had to checkin by 10 to fill out paperwork since it is his first appt and meeting at Flagstaff Medical Center......Once we arrived Asher and I checked in while Mark got the girls together to come in as well..they met up with us a bit later.....He met first with Dr Holt, then the Physical therapist and then dr. T the neurologist......Dr. T informed us that we are very lucky to even be here with all the trauma that occurred..and this we know! :D he thouroughly looked Asher over and came to a prognosis that it is possible that Asher will have Celebral Palsy...It will be more known as time will tell.....We will go back in 6 months for him to assess further his diagnosis around Asher's 1st birthday.. Like Dr. T said if this is the only thing that comes from all that we went through then we are all very very lucky....Asher will always have the bleeding on his brain and time will tell whether or not it will affect him in his major milestones, he will be assessing the MRI results from Dr Teadori's office once they fax the reading to him and he will decide once he recieves the images where we need to go from here but they will not do another MRI until Asher's 2nd birthday..which will help them see more of what will be affected by the bleeding on his brain. He will also assess the other part of the MRI they found and werent sure what it was, and he will get back to us with his assessement....I am feeling lots and lots of mixed feelings; on the outside Asher seems to be doing great but on the inside my little guy has so much trauma to his brain....I really truly hope that everything will be ok! :D He is such a blessing from God! Once again time will tell and we wait some more....I feel like all we ever do is wait, and wait and wait some more...........All of this may have been able to be fixed if they would have properly diagnosed me with Pre-clampsia while in the hospital instead of testing me 4 times and saying all 4 times that I didnt have it...when I had all the symptoms and then went into seizures...They could have stopped the whole mess by treating me with Magnesium.....

"Cerebral Palsy is a broad term used to describe a group of chronic movement or posture disorders. “Cerebral” refers to the brain, while “Palsy” refers to a physical disorder, such as a lack of muscle control. Cerebral Palsy is not caused by problems with the muscles or nerves, but rather with the brain’s ability to adequately control the body. Cerebral Palsy can be caused by injury during birth, although sometimes it is the result of later damage to the brain. Symptoms usually appear in the first few years of life and once they appear, they generally do not worsen over time. Disorders are classified into four categories:"
They are diagnosing that Asher will have:
Spastic Cerebral Palsy
Spastic Cerebral Palsy is the most common diagnosis. If your child’s CP is “spastic,” his muscles are rigid and jerky, and he has difficulty getting around. There are three types of spastic Cerebral Palsy: The two types Asher may have are either

Spastic diplegia — Your child’s leg and hip muscles are tight, and his legs cross at the knees, making it difficult to walk. This kind of movement is frequently referred to as “scissoring.”
or
Spastic hemiplegia — Only one side of your child’s body is stiff. Her arms or hands might be more affected than her legs. On the affected side, her arm and leg may not develop normally. She may also require leg braces.

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